Reality.

Kerosene-Kitty's picture

Reality.

Hey,
I’m Katie-Ellen, I wanted to take an opportunity to thank the band as they helped get me though a pretty rough patch.
When I turned 14 I was rushed to hospital with 3 blood clots 1 in my leg on in my neck and one near my stomach. This was a repeat from my childhood, which prompted them to think that something more troublesome was wrong, after many tests and over 7 weeks in Hospital they let me go with a long list of things I couldn’t eat, drink or do. 3 months later I cut my leg on some barbed wire and the bleeding wouldn’t stop as the clotting was now failing. This resulted in another hospital stay the only thing that was remotely telling was that just before both episodes I had suffered joint pain, a facial butterfly rash, dizzy spells and seized up joints at 14 this is that last thing you want I was starting to work my self in to a real state. So I was then put on a blood-thickening agent, and made to attend 1 doctor’s appointment per week. No treatments were working I could only manage the symptoms with drugs. I began to get down as my riding was limited I had begun to bruise, and couldn’t risk a cut most of the time. One of my doctors thought I had leukemia as I was getting so ill so often and my bloods were so inconsistent.
This went on for about 8 months when I came down very ill again, this time being sent to a ward in Manchester, where a doctor was visiting from the US. He said after one look at my chart that I had Lupus, I know house is always telling us its never lupus. My doctors were obviously fans as they literally laughed it out of the room. I was in a really bad way mentally at this point even on my good days I was scared to leave the house as I thought I was going to die. At which point I begun to listen to bullets. I found myself listening and falling head over feet for ‘our lady of sorrows’. It just hit me that I was 15 and I was not going to let myself be defeated by something that was part of me.
I went outside in my PJ’s at 11pm turned the floodlights on in the arena saddled up my Patrick and rode for about 2 hours. After that I researched Lupus as a condition and all symptoms matched. So met with a new doctor who was quick to book me new appointments. Two months later I had been diagnosed with Lupus a type of autoimmune disorder although has no official effect it has many symptoms.
Mine is so severe that I have been told I will be very ill with basic illnesses such as the common cold, it can and has knocked me on my back but every time I get this I can listen to ‘Lady’ and I know I can deal. I will never be able to carry a child to term, but with bed rest and support I will be able to carry till it is safe to induce. I cannot have certain hormone or vitamin containing foods but I can deal with this now.
I am 18 I have lived with this for 3 years, I have a boyfriend who looks after me on my bad days and puts up with me when I bounce off the walls on my good and loves me regardless.
I’m hoping to be a photographer I love to capture a moment that could be forgotten or lost. I got to meet the guys in Nottingham, fleeting though it was, I got a hug and a smile plus a signed photo it made my year.
I am happy with my life, I love, I laugh, I sing and I live. I hope that none ever takes it for granted cause everyday is one to be lived like it’s your last.
Yours Kitty
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