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it's different

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chpeverill-conti's picture
on November 19, 2014 - 11:54am

I just posted about this yesterday, but I can't get it out of my head. I was researching guardianships for adults, so I could learn more about what Ben was getting into. There wasn't much helpful info that I could find, so I looked up his diagnoses. Autism and developmental deployment. I KNEW it would piss me off, so I don't know why I googled it...
They give you a list of symptoms and cures and medication and all that. I HATE it when they tell me that stuff. cause what the definition and what the websites say is SO not what Ben's like. Every special needs kid is different. SO different. two people could have the same disability and ;look ENTIRELY different. And the more diagnoses you add, the more individual their case is, the more individual their treatment is.
I wish someone understood. REALLY understood. I go to a teen sibling group (for teens who have siblings with disabilities). I like it there a lot, I even ran into a friend from WAGLY. but they don't get my situation, just like I don't get theirs. Cause all our sibs are different. Which is better, having a sibling who is non-verbal and non functioning or a sibling who can't stop complaining and yelling and going to far and exploding? Neather. whatever your vision of special needs is, it's wrong. There isn't one vision. There are so many degrees of disabled that people forget.
I wish I could write it all down so people would get it, understand, see what I go through. But I don't think that would be fair to ben and my family. Maybe I'll do it for myself. I wish I could be mad at someone, my parents or ben. And I can't tell weather I'm better or worse around this since I've grown and learned more about all this
xoxo
- Z